Patient Related Outcomes

Measuring the patient’s Health Related Quality of Life (HRQoL) is important in evaluating the impact of a specific condition, the effectiveness of a treatment or an intervention and measuring provision of quality health care.

Measuring Health Related Quality of Life (HRQoL). What Are Patient reported outcomes? Why are they important?

As health care systems struggle with rising costs improving performance and accountability depends on having a shared goal that unites the interests and activities of all stakeholders. Refocusing efforts on value, as determined by the evaluation of patient outcomes relative to costs of interventions is becoming a priority.  Measuring the patient’s Health Related Quality of Life (HRQoL) is important in evaluating the impact of a specific condition, the effectiveness of a treatment or an intervention and measuring provision of quality health care.  Measuring HRQoL by collecting Patient Related Outcomes (PROs) is becoming a more commonly accepted way in which to gather this information.   

A PRO is a term used to describe any health information that is provided by the patient without interpretation of the patient’s response by a clinician or anyone else.  A patient reported outcome is basically a patient's feedback on how they function and well being as they are dealing with a specific condition.  A PRO measures major self-reported health domains (eg, pain, fatigue, emotional distress, physical function, social function) that are relevant.  This presents the Surgeon and the patient with valuable information about the course of therapy along with an easy way to determine whether or not things are improving.

The Newro Foundation is collaborating internationally with other health care providers to establish recommendations for the appropriate PROs to be used for each condition. The International Consortium for Health Outcomes Measurement (ICHOM) is an organization dedicated to facilitating the effective use of PROs through the provision of infrastructure to allow these groups to establish standards of practice in the collection of PROs.

Outcomes are measured through an internationally recognized (Gold Standard) instrument or questionnaire.   Each specific medical condition will have its own outcome measures. PRO are measured in absolute terms or as a change from a previous measure. Findings measured by a well-defined and reliable PRO instrument can be used to support a claim in medical benefit of a particular intervention, health care service provision

 Outcome measurement seeks to

  • Track and improve clinical outcomes
  • Understand the impact of outcomes on patients and families
  • Monitor Patient Function and Well being over time
  • Evaluate interventions or health care practice  such as surgical procedures
  • Facilitate patient-doctor communication
  • Promote shared decision making
  • Evaluate Health Care Providers
  • Evaluating Value based health care
  • Establishing continuous assessment of quality of care
  • Economic Evaluation of a health care service

The Newro Foundation coordinates the collection of PROs through the use on an online patient survey application Surgical Outcome Survey (SOS). By tracking PROs we learn about what happens to our patients, and we also learn about our performance as a health care delivery organization.